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Counting cancer: On making cancer a notifiable disease in India

04 Jul 2026
2 min

Cancer Notification in India

The approach towards making cancer a notifiable disease in India varies between States and the national level. Presently, it is not a notifiable disease nationally, with the Health Ministry emphasizing notification for communicable diseases only.

Current Data Collection Methods

  • Population-based and Hospital-based Cancer Registries:
    • These are the primary national tools for counting cancer cases.
    • They cover about 10%-16% of the population.
    • Predominantly skewed towards urban, government healthcare setups.

State-Level Initiatives

  • Notifiable Disease Status:
    • Several States have declared cancer as a notifiable disease.
    • Telangana is the latest, bringing the total to 17 States.

Projected Increase in Cancer Cases

  • The Global Cancer Observatory's Projection:
    • Estimated increase of 1.05 million cases from 2022 to 2045.
    • Expected rise is over 74%.
    • Influencing factors: increasing lifespan, aging demographics, lifestyle, and diet changes.

Challenges and Recommendations

  • Data Limitation:
    • Existing registries are mostly urban-centric and do not capture data from the private healthcare sector uniformly.
  • Recommendation by Indian Council of Medical Research (ICMR):
    • ICMR-NINE recommended cancer be made a notifiable disease years ago.
    • Acknowledges an increase in recorded cases but stresses the importance of comprehensive data for informed healthcare and IEC strategies.

Conclusion

The Indian government is urged to learn from State-level initiatives and make cancer a notifiable disease to improve data collection and enhance public health response strategies.

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IEC Strategies

Information, Education, and Communication strategies. These are used in public health to disseminate information, raise awareness, and promote behaviour change related to health issues.

Indian Council of Medical Research (ICMR)

The apex body in India for the formulation, promotion, and coordination of biomedical research. ICMR plays a crucial role in understanding AMR trends in India through data collection from hospitals and research into diagnostics and alternative therapies.

Hospital-based Cancer Registries

Cancer registries that collect data on cancer patients treated at a specific hospital. They are useful for studying trends within a healthcare institution but may not represent the broader population.

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